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About Us
About Down Syndrome

Down syndrome is a genetic condition resulting from the presence of all or a partial extra copy of chromosome 21 – individuals with Down syndrome have 47 instead of the usual 46 chromosomes.  This additional genetic material alters development and causes the physical characteristics associated with Down syndrome.  …more

New & Expectant Parents
New & Expectant Parents

You can count on the Up Side of Downs to be supportive, informative and there for your family. As we grow as a community, we hope you will be involved in our many activities and services. Families take great comfort in sharing and talking with other families, and the USOD is proud to make these connections happen.  …more

Support Groups
Support Groups

One of the best ways to meet other parents is to get involved with the Up Side of Downs Family Support Groups. These groups can provide you with an excellent forum for sharing your feelings and concerns as a new parent, and an opportunity to learn from the experiences of others who have been in your shoes.  …more


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October  2020
SMTWTFS
 1
  • Jacobs Ladder 321 Virtual Workout
    Starts: 6:00 pm
    Ends: October 1, 2020 - 7:00 pm
    Description: Tony D'Orazio, founder of Jacobs ladder Special Needs Fitness, along with his son, Jake, who is a certified fitness instructor, lead us through a virtual calisthenic-based workout. Moms, dads, & siblings can join in too! RSVP to rich@usod.org.
  • Cooking Made Easy
    Starts: 6:45 pm
    Ends: October 1, 2020 - 7:45 pm
    Description: Join in this popular class as we make recipes using a variety of ingredients and cooking tools. Visual recipes will be used to help participants follow the steps. RSVP to gina@usod.org to get the Zoom link and visual recipe. Note: Participants are limited per class to ensure one-on-one coaching.
  • Sunburst Gala Planning Committee
    Starts: 7:00 pm
    Ends: October 1, 2020 - 8:00 pm
    Description: Interested in getting involved in planning our annual Sunburst Gala? Join us for the next planning meeting. For more information, contact maria@usod.org
  • Transition Boosters Virtual Training
    Starts: 7:00 pm
    Ends: October 1, 2020 - 8:00 pm
    Description: Back to the Basics: Advocating for your Transition-Aged Loved One during COVID-19 and beyond. RSVP: <a href="https://tinyurl.com/tbyb6f5&quot; id="ow2739" __is_owner="true">https://www.eventbrite.com/e/northeast-ohio-2020-transition-booster-back-to-the-basics-tickets-96347320429</a&gt;
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  • Dance Party with No Rulz Art
    Starts: 1:30 pm
    Ends: October 2, 2020 - 2:30 pm
    Description: Join the fun at this virtual dance party with our friends at No Rulz Art. RSVP to lauriek@usod.org for the Zoom code.
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  • Special Needs Planning Series
    Starts: 12:00 pm
    Ends: October 3, 2020 - 1:30 pm
    Description: USOD has partnered with experts in the field to discuss topics such as Financial Planning, Special Needs Trusts, A.B.L.E. Act/STABLE accounts, Wills/Estate Planning, Guardianship/Powers of Attorney. Session 1: Ken Vinikoff from Skylight Financial. RSVP to <a href="mailto:Rich@usod.org">Rich@usod.org</a> for the Zoom code.
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  • Virtual Sing Along
    Starts: 10:00 am
    Ends: October 6, 2020 - 11:00 am
    Description: Join Jesse Jukebox on Zoom for this virtual sing along for the enjoyment of the entire family. RSVP to debbie@usod.org
  • Jacobs Ladder 321 Virtual Workout
    Starts: 6:00 pm
    Ends: October 6, 2020 - 7:00 pm
    Description: Tony D'Orazio, founder of Jacobs ladder Special Needs Fitness, along with his son, Jake, who is a certified fitness instructor, lead us through a virtual calisthenic-based workout. Moms, dads, & siblings can join in too! RSVP to rich@usod.org.
7
  • Young Friends Fun Time with Ms. Barb
    Starts: 5:00 pm
    Ends: October 7, 2020 - 6:00 pm
    Description: Families of young children are invited to have a fun time with Ms. Barb Waddle, which is the online space where the imagination and laughter take place. RSVP to rich@usod.org for the Zoom code.
  • MBS Virtual Bingo
    Starts: 6:30 pm
    Ends: October 7, 2020 - 7:30 pm
    Description: The MindBodySoul program is hosting a virtual bingo for adults with Down syndrome via Zoom. The bingo game is exactly like the bingo we all know. RSVP to linda@usod.org
  • DADS' Night In
    Starts: 8:00 pm
    Ends: October 7, 2020 - 10:00 pm
    Description: Dads & granddads join us for our monthly Dads' Night In from the comfort of your couch. We will connect through Zoom to see how everyone is doing. RSVP on the "USOD DADS Group" Facebook page event to get the Zoom link, or email rich@usod.org
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  • Jacobs Ladder 321 Virtual Workout
    Starts: 6:00 pm
    Ends: October 8, 2020 - 7:00 pm
    Description: Tony D'Orazio, founder of Jacobs ladder Special Needs Fitness, along with his son, Jake, who is a certified fitness instructor, lead us through a virtual calisthenic-based workout. Moms, dads, & siblings can join in too! RSVP to rich@usod.org.
  • Cooking Made Easy
    Starts: 6:45 pm
    Ends: October 8, 2020 - 7:45 pm
    Description: Join in this popular class as we make recipes using a variety of ingredients and cooking tools. Visual recipes will be used to help participants follow the steps. RSVP to gina@usod.org to get the Zoom link and visual recipe. Note: Participants are limited per class to ensure one-on-one coaching.
9
  • Dance Party with No Rulz Art
    Starts: 1:30 pm
    Ends: October 9, 2020 - 2:30 pm
    Description: Join the fun at this virtual dance party with our friends at No Rulz Art. RSVP to lauriek@usod.org for the Zoom code.
  • Moms Night In
    Starts: 7:00 pm
    Ends: October 9, 2020 - 9:00 pm
    Description: It's time to take a break! Grab your favorite snack and drink to chat with your USOD mom friends as we connect through Zoom. RSVP to <a href="mailto:rich@usod.org">rich@usod.org</a> for the Zoom link.
10
  • Special Needs Planning Series
    Starts: 12:00 pm
    Ends: October 10, 2020 - 1:30 pm
    Description: USOD has partnered with experts in the field to discuss topics such as Financial Planning, Special Needs Trusts, A.B.L.E. Act/STABLE accounts, Wills/Estate Planning, Guardianship/Powers of Attorney. Session 2: Richie Webb from Lifetime Financial Growth. RSVP to Rich@usod.org for the Zoom code.
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  • Grandparents Virtual Support Group
    Starts: 10:00 am
    Ends: October 12, 2020 - 11:30 am
    Location: USOD Office, 6533-B Brecksville Road, Independence, OH 44131
    Description: USOD grandparents join us via Zoom. RSVP to Laurie at 216.702.3820 or <a href="mailto:lauriek@usod.org">lauriek@usod.org</a>.
  • Back to School Parents Roundtable
    Starts: 7:00 pm
    Ends: October 12, 2020 - 9:00 pm
    Description: How are your kids transitioning back to school? How are they adjusting back in the classroom?
    If they are still virtual, how is it going? Any behavior issues? Any social-emotional issues?
    How can the USOD better support you and your child, and their educational needs? Do you have any IEP concerns? Let's get together and see how everyone is doing. RSVP to rich@usod.org for the Zoom code.
13
  • Virtual Sing Along
    Starts: 10:00 am
    Ends: October 13, 2020 - 11:00 am
    Description: Join Jesse Jukebox on Zoom for this virtual sing along for the enjoyment of the entire family. RSVP to debbie@usod.org
  • Jacobs Ladder 321 Virtual Workout
    Starts: 6:00 pm
    Ends: October 13, 2020 - 7:00 pm
    Description: Tony D'Orazio, founder of Jacobs ladder Special Needs Fitness, along with his son, Jake, who is a certified fitness instructor, lead us through a virtual calisthenic-based workout. Moms, dads, & siblings can join in too! RSVP to rich@usod.org.
14
  • Young Friends Fun Time with Ms. Barb
    Starts: 5:00 pm
    Ends: October 14, 2020 - 6:00 pm
    Description: Families of young children are invited to have a fun time with Ms. Barb Waddle, which is the online space where the imagination and laughter take place. RSVP to rich@usod.org for the Zoom code.
  • MBS Virtual Bingo
    Starts: 6:30 pm
    Ends: October 14, 2020 - 7:30 pm
    Description: The MindBodySoul program is hosting a virtual bingo for adults with Down syndrome via Zoom. The bingo game is exactly like the bingo we all know. RSVP to linda@usod.org
15
  • Jacobs Ladder 321 Virtual Workout
    Starts: 6:00 pm
    Ends: October 15, 2020 - 7:00 pm
    Description: Tony D'Orazio, founder of Jacobs ladder Special Needs Fitness, along with his son, Jake, who is a certified fitness instructor, lead us through a virtual calisthenic-based workout. Moms, dads, & siblings can join in too! RSVP to rich@usod.org.
  • Cooking Made Easy
    Starts: 6:45 pm
    Ends: October 15, 2020 - 7:45 pm
    Description: Join in this popular class as we make recipes using a variety of ingredients and cooking tools. Visual recipes will be used to help participants follow the steps. RSVP to gina@usod.org to get the Zoom link and visual recipe. Note: Participants are limited per class to ensure one-on-one coaching.
  • Transition Boosters Virtual Training
    Starts: 7:00 pm
    Ends: October 15, 2020 - 8:00 pm
    Description: Topic: Guardianship and other alternatives. Meeting via Zoom. For more information and to RSVP: https://www.frnohio.org/wp-content/uploads/2020/01/NEO-Oct-15-2020-TB-Guard-Alt-1.pdf
16
  • Dance Party with No Rulz Art
    Starts: 1:30 pm
    Ends: October 16, 2020 - 2:30 pm
    Description: Join the fun at this virtual dance party with our friends at No Rulz Art. RSVP to lauriek@usod.org for the Zoom code.
17
  • Special Needs Planning Series
    Starts: 10:00 am
    Ends: October 17, 2020 - 11:30 am
    Description: USOD has partnered with experts in the field to discuss topics such as Financial Planning, Special Needs Trusts, A.B.L.E. Act/STABLE accounts, Wills/Estate Planning, Guardianship/Powers of Attorney. Session 3: Dave Barth from Lakeside Financial Partners. RSVP to Rich@usod.org for the Zoom code.
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  • Virtual Sing Along
    Starts: 10:00 am
    Ends: October 20, 2020 - 11:00 am
    Description: Join Jesse Jukebox on Zoom for this virtual sing along for the enjoyment of the entire family. RSVP to debbie@usod.org
  • Jacobs Ladder 321 Virtual Workout
    Starts: 6:30 pm
    Ends: October 20, 2020 - 7:30 pm
    Description: Tony D'Orazio, founder of Jacobs ladder Special Needs Fitness, along with his son, Jake, who is a certified fitness instructor, lead us through a virtual calisthenic-based workout. Moms, dads, & siblings can join in too! RSVP to rich@usod.org.
21
  • Young Friends Fun Time with Ms. Barb
    Starts: 5:00 pm
    Ends: October 21, 2020 - 6:00 pm
    Description: Families of young children are invited to have a fun time with Ms. Barb Waddle, which is the online space where the imagination and laughter take place. RSVP to rich@usod.org for the Zoom code.
  • MBS Virtual Bingo
    Starts: 6:30 pm
    Ends: October 21, 2020 - 7:30 pm
    Description: The MindBodySoul program is hosting a virtual bingo for adults with Down syndrome via Zoom. The bingo game is exactly like the bingo we all know. RSVP to linda@usod.org
22
  • Jacobs Ladder 321 Virtual Workout
    Starts: 6:30 pm
    Ends: October 22, 2020 - 7:30 pm
    Description: Tony D'Orazio, founder of Jacobs ladder Special Needs Fitness, along with his son, Jake, who is a certified fitness instructor, lead us through a virtual calisthenic-based workout. Moms, dads, & siblings can join in too! RSVP to rich@usod.org.
  • Cooking Made Easy
    Starts: 6:45 pm
    Ends: October 22, 2020 - 7:45 pm
    Description: Join in this popular class as we make recipes using a variety of ingredients and cooking tools. Visual recipes will be used to help participants follow the steps. RSVP to gina@usod.org to get the Zoom link and visual recipe. Note: Participants are limited per class to ensure one-on-one coaching.
23
  • Dance Party with No Rulz Art
    Starts: 1:30 pm
    Ends: October 23, 2020 - 2:30 pm
    Description: Join the fun at this virtual dance party with our friends at No Rulz Art. RSVP to lauriek@usod.org for the Zoom code.
24
  • Special Needs Planning Series
    Starts: 10:00 am
    Ends: October 24, 2020 - 11:30 am
    Description: USOD has partnered with experts in the field to discuss topics such as Financial Planning, Special Needs Trusts, A.B.L.E. Act/STABLE accounts, Wills/Estate Planning, Guardianship/Powers of Attorney. Session 4: Matt Slain from 21st Century Financial. RSVP to Rich@usod.org for the Zoom code.
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  • Virtual Sing Along
    Starts: 10:00 am
    Ends: October 27, 2020 - 11:00 am
    Description: Join Jesse Jukebox on Zoom for this virtual sing along for the enjoyment of the entire family. RSVP to debbie@usod.org
  • Mind-Body-Soul Lunch Bunch
    Starts: 12:00 pm
    Ends: October 27, 2020 - 1:00 pm
    Description: Adults with Down syndrome - Meet up via Zoom with your friends for a fun lunch conversation! RSVP to linda@usod.org for the Zoom link!
  • Jacobs Ladder 321 Virtual Workout
    Starts: 6:30 pm
    Ends: October 27, 2020 - 7:30 pm
    Description: Tony D'Orazio, founder of Jacobs ladder Special Needs Fitness, along with his son, Jake, who is a certified fitness instructor, lead us through a virtual calisthenic-based workout. Moms, dads, & siblings can join in too! RSVP to rich@usod.org.
28
  • Young Friends Fun Time with Ms. Barb
    Starts: 5:00 pm
    Ends: October 28, 2020 - 6:00 pm
    Description: Families of young children are invited to have a fun time with Ms. Barb Waddle, which is the online space where the imagination and laughter take place. RSVP to rich@usod.org for the Zoom code.
  • MBS Virtual Bingo
    Starts: 6:30 pm
    Ends: October 28, 2020 - 7:30 pm
    Description: The MindBodySoul program is hosting a virtual bingo for adults with Down syndrome via Zoom. The bingo game is exactly like the bingo we all know. RSVP to linda@usod.org
29
  • Jacobs Ladder 321 Virtual Workout
    Starts: 6:30 pm
    Ends: October 29, 2020 - 7:30 pm
    Description: Tony D'Orazio, founder of Jacobs ladder Special Needs Fitness, along with his son, Jake, who is a certified fitness instructor, lead us through a virtual calisthenic-based workout. Moms, dads, & siblings can join in too! RSVP to rich@usod.org.
  • Cooking Made Easy
    Starts: 6:45 pm
    Ends: October 29, 2020 - 7:45 pm
    Description: Join in this popular class as we make recipes using a variety of ingredients and cooking tools. Visual recipes will be used to help participants follow the steps. RSVP to gina@usod.org to get the Zoom link and visual recipe. Note: Participants are limited per class to ensure one-on-one coaching.
30
  • Dance Party with No Rulz Art
    Starts: 1:30 pm
    Ends: October 30, 2020 - 2:30 pm
    Description: Join the fun at this virtual dance party with our friends at No Rulz Art. RSVP to lauriek@usod.org for the Zoom code.
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Upcoming Events

Oct 30 - Dance Party with No Rulz Art
Nov 3 - Virtual Sing Along
Nov 3 - Jacobs Ladder 321 Virtual Workout
Nov 4 - Young Friends Fun Time with Ms. Barb
Nov 4 - MBS Virtual Bingo
Nov 4 - DADS' Night In
Nov 5 - Jacobs Ladder 321 Virtual Workout
Nov 5 - Cooking Made Easy
Nov 5 - Sunburst Gala Committee Meeting
Nov 6 - Dance Party with No Rulz Art
Nov 9 - Grandparents Virtual Support Group
Nov 10 - Virtual Sing Along
Nov 10 - Jacobs Ladder 321 Virtual Workout
Nov 11 - Young Friends Fun Time with Ms. Barb
Nov 11 - Circle of Support
Nov 11 - MBS Virtual Bingo
Nov 12 - Jacobs Ladder 321 Virtual Workout
Nov 12 - Cooking Made Easy
Nov 13 - Dance Party with No Rulz Art
Nov 13 - Moms Night In
Nov 17 - Virtual Sing Along
Nov 17 - Jacobs Ladder 321 Virtual Workout
Nov 18 - Young Friends Fun Time with Ms. Barb
Nov 18 - MBS Virtual Bingo
Nov 19 - Jacobs Ladder 321 Virtual Workout
Nov 19 - Cooking Made Easy
Nov 20 - Dance Party with No Rulz Art
Nov 24 - Jacobs Ladder 321 Virtual Workout
Nov 25 - MBS Virtual Bingo