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About Us
About Down Syndrome

Down syndrome is a genetic condition resulting from the presence of all or a partial extra copy of chromosome 21 – individuals with Down syndrome have 47 instead of the usual 46 chromosomes.  This additional genetic material alters development and causes the physical characteristics associated with Down syndrome.  …more

New & Expectant Parents
New & Expectant Parents

You can count on the Up Side of Downs to be supportive, informative and there for your family. As we grow as a community, we hope you will be involved in our many activities and services. Families take great comfort in sharing and talking with other families, and the USOD is proud to make these connections happen.  …more

Support Groups
Support Groups

One of the best ways to meet other parents is to get involved with the Up Side of Downs Family Support Groups. These groups can provide you with an excellent forum for sharing your feelings and concerns as a new parent, and an opportunity to learn from the experiences of others who have been in your shoes.  …more


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April  2021
SMTWTFS
 1
  • 321 Virtual Workout
    Starts: 6:30 pm
    Ends: April 1, 2021 - 7:30 pm
    Description: Movement and calisthenic-based workouts sponsored by Jacobs Ladder Special Needs Fitness. Fun for the whole family. RSVP to the Events in the USOD Parent to Parent Network Facebook group to get the Zoom info. If you are not a member, please join. Those not on Facebook can email rich@usod.org
  • Cooking with Confidence
    Starts: 6:45 pm
    Ends: April 1, 2021 - 7:45 pm
    Description: For teens & adults - visual recipes will be used to help participants follow the steps. RSVP to gina@usod.org to get the Zoom link and visual recipe. Note: Class size is limited to ensure one-on-one coaching.
  • DS+ Parents Night
    Starts: 7:30 pm
    Ends: April 1, 2021 - 9:30 pm
    Description: An opportunity to network and get to know other parents from within the USOD family that are on the similar extra path that you are. RSVP to event in USOD DS+ to get the Zoom code. Those not on Facebook can email rich@usod.org
2
  • No Rulz Dance Party
    Starts: 1:30 pm
    Ends: April 2, 2021 - 2:00 pm
    Description: Join us for a No Rulz Dance Party on Zoom every Friday. The Zoom meeting will open at 1:15 pm because dancing will start promptly at 1:30 pm. RSVP to Laurie at lauriek@usod.org for the Zoom link.
3
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  • Virtual Sing Along with Jesse Jukebox
    Starts: 10:00 am
    Ends: April 6, 2021 - 11:00 am
    Description: Meet us on Zoom! This is a virtual sing-along for the enjoyment of the entire family. RSVP to Debbie at debbie@usod.org
  • 321 Young Friends Workout (Ages 5-10)
    Starts: 5:30 pm
    Ends: April 6, 2021 - 6:00 pm
    Description: Movement & Calisthenic-based workouts conducted by Jacobs Ladder Special Needs Fitness. For ages 5-10. RSVP to the event in the USOD Parent to Parent Network Facebook group or email rich@usod.org
  • 321 Virtual Workout (Ages 10 & up)
    Starts: 6:30 pm
    Ends: April 6, 2021 - 7:30 pm
    Description: Movement & Calisthenic-based workouts conducted by Jacobs Ladder Special Needs Fitness. Fun for the whole family. RSVP to the Events in the USOD Parent to Parent Network Facebook group or email rich@usod.org for the Zoom link.
7
  • MBS Virtual Bingo
    Starts: 6:30 pm
    Ends: April 7, 2021 - 7:30 pm
    Description: The Mind Body Soul program hosts a virtual bingo. The bingo game is exactly like the bingo we all know - and you can win prizes! RSVP to linda@usod.org.
  • Circle of Support
    Starts: 7:00 pm
    Ends: April 7, 2021 - 8:30 pm
    Description: This month's topic is Autoimmune Disorders. Presented by Dr. Carl Tyler. All are welcome. Please RSVP to debbie@usod.org for the Zoom link.
  • DADS' Night In
    Starts: 8:00 pm
    Ends: April 7, 2021 - 10:00 pm
    Description: Dads & granddads join us for our monthly Dads' Night In from the comfort of your couch. We will connect through Zoom to see how everyone is doing. RSVP on the "USOD DADS Group" Facebook page event to get the Zoom link, or email rich@usod.org
8
  • 321 Virtual Workout
    Starts: 6:30 pm
    Ends: April 8, 2021 - 7:30 pm
    Description: Movement and calisthenic-based workouts sponsored by Jacobs Ladder Special Needs Fitness. Fun for the whole family. RSVP to the Events in the USOD Parent to Parent Network Facebook group to get the Zoom info. If you are not a member, please join. Those not on Facebook can email rich@usod.org
  • Cooking with Confidence
    Starts: 6:45 pm
    Ends: April 8, 2021 - 7:45 pm
    Description: For teens & adults - visual recipes will be used to help participants follow the steps. RSVP to gina@usod.org to get the Zoom link and visual recipe. Note: Class size is limited to ensure one-on-one coaching.
9
  • No Rulz Dance Party
    Starts: 1:30 pm
    Ends: April 9, 2021 - 2:00 pm
    Description: Join us for a No Rulz Dance Party on Zoom every Friday. The Zoom meeting will open at 1:15 pm because dancing will start promptly at 1:30 pm. RSVP to Laurie at lauriek@usod.org for the Zoom link.
  • Moms Night In
    Starts: 7:00 pm
    Ends: April 9, 2021 - 9:00 pm
    Description:  Take a break, grab your favorite snack and drink and chat with your USOD mom friends as we connect through Zoom. RSVP to event on USOD Parent to Parent Network Facebook page or by email to <a href="mailto:rich@usod.org">rich@usod.org</a>
10
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  • Grandparents Virtual Support Group
    Starts: 10:00 am
    Ends: April 12, 2021 - 11:30 am
    Location: USOD Office, 6533-B Brecksville Road, Independence, OH 44131
    Description: USOD grandparents join us via Zoom. RSVP to Laurie at 216.702.3820 or <a href="mailto:lauriek@usod.org">lauriek@usod.org</a>.
13
  • Virtual Sing Along with Jesse Jukebox
    Starts: 10:00 am
    Ends: April 13, 2021 - 11:00 am
    Description: Meet us on Zoom! This is a virtual sing-along for the enjoyment of the entire family. RSVP to Debbie at debbie@usod.org
  • 321 Young Friends Workout (Ages 5-10)
    Starts: 5:30 pm
    Ends: April 13, 2021 - 6:00 pm
    Description: Movement & Calisthenic-based workouts conducted by Jacobs Ladder Special Needs Fitness. For ages 5-10. RSVP to the event in the USOD Parent to Parent Network Facebook group or email rich@usod.org
  • 321 Virtual Workout (Ages 10 & up)
    Starts: 6:30 pm
    Ends: April 13, 2021 - 7:30 pm
    Description: Movement & Calisthenic-based workouts conducted by Jacobs Ladder Special Needs Fitness. Fun for the whole family. RSVP to the Events in the USOD Parent to Parent Network Facebook group or email rich@usod.org for the Zoom link.
14
  • Keith the Magic Man's Magic Camp Session 1
    Starts: 5:00 pm
    Ends: April 14, 2021 - 5:30 pm
    Description: For ages 16 and up. Registration required with Barb at barbw@usod.org. Please register for one session only.
  • Keith the Magic Man's Magic Camp Session 2
    Starts: 5:30 pm
    Ends: April 14, 2021 - 6:00 pm
    Description: For ages 16 and up. Registration required with Barb at barbw@usod.org. Please register for one session only.
  • MBS Virtual Bingo
    Starts: 6:30 pm
    Ends: April 14, 2021 - 7:30 pm
    Description: The Mind Body Soul program hosts a virtual bingo. The bingo game is exactly like the bingo we all know - and you can win prizes! RSVP to linda@usod.org.
15
  • 321 Virtual Workout
    Starts: 6:30 pm
    Ends: April 15, 2021 - 7:30 pm
    Description: Movement and calisthenic-based workouts sponsored by Jacobs Ladder Special Needs Fitness. Fun for the whole family. RSVP to the Events in the USOD Parent to Parent Network Facebook group to get the Zoom info. If you are not a member, please join. Those not on Facebook can email rich@usod.org
  • Cooking with Confidence
    Starts: 6:45 pm
    Ends: April 15, 2021 - 7:45 pm
    Description: For teens & adults - visual recipes will be used to help participants follow the steps. RSVP to gina@usod.org to get the Zoom link and visual recipe. Note: Class size is limited to ensure one-on-one coaching.
16
  • No Rulz Dance Party
    Starts: 1:30 pm
    Ends: April 16, 2021 - 2:00 pm
    Description: Join us for a No Rulz Dance Party on Zoom every Friday. The Zoom meeting will open at 1:15 pm because dancing will start promptly at 1:30 pm. RSVP to Laurie at lauriek@usod.org for the Zoom link.
17
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  • Virtual Sing Along with Jesse Jukebox
    Starts: 10:00 am
    Ends: April 20, 2021 - 11:00 am
    Description: Meet us on Zoom! This is a virtual sing-along for the enjoyment of the entire family. RSVP to Debbie at debbie@usod.org
  • 321 Young Friends Workout (Ages 5-10)
    Starts: 5:30 pm
    Ends: April 20, 2021 - 6:00 pm
    Description: Movement & Calisthenic-based workouts conducted by Jacobs Ladder Special Needs Fitness. For ages 5-10. RSVP to the event in the USOD Parent to Parent Network Facebook group or email rich@usod.org
  • 321 Virtual Workout (Ages 10 & up)
    Starts: 6:30 pm
    Ends: April 20, 2021 - 7:30 pm
    Description: Movement & Calisthenic-based workouts conducted by Jacobs Ladder Special Needs Fitness. Fun for the whole family. RSVP to the Events in the USOD Parent to Parent Network Facebook group or email rich@usod.org for the Zoom link.
21
  • Fun with Mrs. Barb
    Starts: 5:00 pm
    Ends: April 21, 2021 - 5:30 pm
    Description: Mrs. Barb Waddle will have a special guest so join us for a virtual visit. RSVP on USOD Parent to Parent Network Facebook group to register. Those not on Facebook can email barbw@usod.org for the Zoom code.
  • MBS Virtual Bingo
    Starts: 6:30 pm
    Ends: April 21, 2021 - 7:30 pm
    Description: The Mind Body Soul program hosts a virtual bingo. The bingo game is exactly like the bingo we all know - and you can win prizes! RSVP to linda@usod.org.
22
  • 321 Virtual Workout
    Starts: 6:30 pm
    Ends: April 22, 2021 - 7:30 pm
    Description: Movement and calisthenic-based workouts sponsored by Jacobs Ladder Special Needs Fitness. Fun for the whole family. RSVP to the Events in the USOD Parent to Parent Network Facebook group to get the Zoom info. If you are not a member, please join. Those not on Facebook can email rich@usod.org
  • Cooking with Confidence
    Starts: 6:45 pm
    Ends: April 22, 2021 - 7:45 pm
    Description: For teens & adults - visual recipes will be used to help participants follow the steps. RSVP to gina@usod.org to get the Zoom link and visual recipe. Note: Class size is limited to ensure one-on-one coaching.
23
  • No Rulz Dance Party
    Starts: 1:30 pm
    Ends: April 23, 2021 - 2:00 pm
    Description: Join us for a No Rulz Dance Party on Zoom every Friday. The Zoom meeting will open at 1:15 pm because dancing will start promptly at 1:30 pm. RSVP to Laurie at lauriek@usod.org for the Zoom link.
24
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  • Virtual Sing Along with Jesse Jukebox
    Starts: 10:00 am
    Ends: April 27, 2021 - 11:00 am
    Description: Meet us on Zoom! This is a virtual sing-along for the enjoyment of the entire family. RSVP to Debbie at debbie@usod.org
  • 321 Young Friends Workout (Ages 5-10)
    Starts: 5:30 pm
    Ends: April 27, 2021 - 6:00 pm
    Description: Movement & Calisthenic-based workouts conducted by Jacobs Ladder Special Needs Fitness. For ages 5-10. RSVP to the event in the USOD Parent to Parent Network Facebook group or email rich@usod.org
  • 321 Virtual Workout (Ages 10 & up)
    Starts: 6:30 pm
    Ends: April 27, 2021 - 7:30 pm
    Description: Movement & Calisthenic-based workouts conducted by Jacobs Ladder Special Needs Fitness. Fun for the whole family. RSVP to the Events in the USOD Parent to Parent Network Facebook group or email rich@usod.org for the Zoom link.
28
  • Keith the Magic Man's Magic Camp Session 3
    Starts: 5:00 pm
    Ends: April 28, 2021 - 5:30 pm
    Description: For ages 16 and up. Registration required with Barb at barbw@usod.org. Please register for one session only.
  • Keith the Magic Man's Magic Camp
    Starts: 5:30 pm
    Ends: April 28, 2021 - 6:00 pm
    Description: For ages 16 and up. Registration required with Barb at barbw@usod.org. Please register for one session only.
  • MBS Virtual Bingo
    Starts: 6:30 pm
    Ends: April 28, 2021 - 7:30 pm
    Description: The Mind Body Soul program hosts a virtual bingo. The bingo game is exactly like the bingo we all know - and you can win prizes! RSVP to linda@usod.org.
29
  • 321 Virtual Workout
    Starts: 6:30 pm
    Ends: April 29, 2021 - 7:30 pm
    Description: Movement and calisthenic-based workouts sponsored by Jacobs Ladder Special Needs Fitness. Fun for the whole family. RSVP to the Events in the USOD Parent to Parent Network Facebook group to get the Zoom info. If you are not a member, please join. Those not on Facebook can email rich@usod.org
  • Cooking with Confidence
    Starts: 6:45 pm
    Ends: April 29, 2021 - 7:45 pm
    Description: For teens & adults - visual recipes will be used to help participants follow the steps. RSVP to gina@usod.org to get the Zoom link and visual recipe. Note: Class size is limited to ensure one-on-one coaching.
  • Down Syndrome & Autism
    Starts: 7:00 pm
    Ends: April 29, 2021 - 9:00 pm
    Description: This discussion, with Dr. Jessica Solomon Sanders, is for parents who are facing autism as an additional diagnosis or other sever behavioral needs. RSVP to the event on the USOD Parent to Parent Network or email at rich@usod.org
  • Transition Boosters
    Starts: 8:30 pm
    Ends: April 29, 2021 - 9:30 pm
    Description: Trusts and Stable Accounts. In this session you will learn: Why it's important to plan and planning options to consider; Estate planning; What are trusts?: Types of trusts and who needs one; Able Act & Stable Account overview, set up and using the funds. Email lauriek@usod.org for more information
30
  • No Rulz Dance Party
    Starts: 1:30 pm
    Ends: April 30, 2021 - 2:00 pm
    Description: Join us for a No Rulz Dance Party on Zoom every Friday. The Zoom meeting will open at 1:15 pm because dancing will start promptly at 1:30 pm. RSVP to Laurie at lauriek@usod.org for the Zoom link.
 

Upcoming Events

Apr 22 - Cooking with Confidence
Apr 23 - No Rulz Dance Party
Apr 27 - 321 Young Friends Workout (Ages 5-10)
Apr 27 - 321 Virtual Workout (Ages 10 & up)
Apr 28 - Long Term Special Needs Planning 2.0
Apr 29 - Cooking with Confidence
Apr 30 - No Rulz Dance Party
May 4 - 321 Young Friends Workout (Ages 5-10)
May 4 - 321 Virtual Workout (Ages 10 & up)
May 5 - Karaoke at Toth's Place
May 5 - DADS' Night In
May 6 - Cooking with Confidence
May 7 - No Rulz Dance Party
May 10 - Grandparents Virtual Support Group
May 10 - Lorain County Young Friends Group
May 11 - 321 Young Friends Workout (Ages 5-10)
May 11 - 321 Virtual Workout (Ages 10 & up)
May 13 - Cooking with Confidence
May 13 - Medina Parent's Night Out
May 14 - No Rulz Dance Party
May 14 - Moms Night In
May 17 - Westside Baby & Toddler Play Group
May 18 - 321 Young Friends Workout (Ages 5-10)
May 18 - 321 Virtual Workout (Ages 10 & up)
May 20 - East Side Baby & Toddler Play Group
May 20 - Cooking with Confidence
May 21 - No Rulz Dance Party