About Us
About Down Syndrome

Down syndrome is a genetic condition resulting from the presence of all or a partial extra copy of chromosome 21 – individuals with Down syndrome have 47 instead of the usual 46 chromosomes.  This additional genetic material alters development and causes the physical characteristics associated with Down syndrome.  …more

New & Expectant Parents
New & Expectant Parents

You can count on the Up Side of Downs to be supportive, informative and there for your family. As we grow as a community, we hope you will be involved in our many activities and services. Families take great comfort in sharing and talking with other families, and the USOD is proud to make these connections happen.  …more

Support Groups
Support Groups

One of the best ways to meet other parents is to get involved with the Up Side of Downs Family Support Groups. These groups can provide you with an excellent forum for sharing your feelings and concerns as a new parent, and an opportunity to learn from the experiences of others who have been in your shoes.  …more


August  2020
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  • Virtual Sing Along
    Starts: 10:00 am
    Ends: August 4, 2020 - 11:00 am
    Description: Join Jesse Jukebox on Zoom for this virtual sing along for the enjoyment of the entire family. RSVP to debbie@usod.org
  • Help your loved one with Ds wear a mask
    Starts: 12:30 pm
    Ends: August 4, 2020 - 1:30 pm
    Description: Join us for this parent/child interactive class that includes making a mask that your child will like to wear! Presented by Kristen Kowalski OTR-L. RSVP to lauriek@usod.org to get the Zoom link.
  • Jacobs Ladder 321 Virtual Workout
    Starts: 6:00 pm
    Ends: August 4, 2020 - 7:00 pm
    Description: Tony D'Orazio, founder of Jacobs ladder Special Needs Fitness, along with his son, Jake, who is a certified fitness instructor, lead us through a virtual calisthenic-based workout. Moms, dads, & siblings can join in too! RSVP to rich@usod.org.
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  • Young Friends Fun Time with Miss Barb
    Starts: 5:00 pm
    Ends: August 5, 2020 - 6:00 pm
    Description: Families with young children are invited to our Young Friends Story Time, an online space where the imagination soars. RSVP to Rich at rich@usod.org for the Zoom code.
  • MBS Virtual Bingo
    Starts: 6:30 pm
    Ends: August 5, 2020 - 7:30 pm
    Description: The MindBodySoul program is hosting a virtual bingo for adults with Down syndrome via Zoom. The bingo game is exactly like the bingo we all know. RSVP to linda@usod.org
  • DADS' Night In
    Starts: 8:00 pm
    Ends: August 5, 2020 - 10:00 pm
    Description: Dads & granddads join us for our monthly Dads' Night In from the comfort of your couch. We will connect through Zoom to see how everyone is doing. RSVP on the "USOD DADS Group" Facebook page event to get the Zoom link, or email rich@usod.org
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  • Jacobs Ladder 321 Virtual Workout
    Starts: 6:00 pm
    Ends: August 6, 2020 - 7:00 pm
    Description: Tony D'Orazio, founder of Jacobs ladder Special Needs Fitness, along with his son, Jake, who is a certified fitness instructor, lead us through a virtual calisthenic-based workout. Moms, dads, & siblings can join in too! RSVP to rich@usod.org.
  • Cooking Made Easy
    Starts: 6:30 pm
    Ends: August 6, 2020 - 7:30 pm
    Description: Join in this popular class as we make recipes using a variety of ingredients and cooking tools. Visual recipes will be used to help participants follow the steps. RSVP to gina@usod.org to get the Zoom link and visual recipe. Note: Participants are limited per class to ensure one-on-one coaching.
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  • Dance Party with No Rulz Art
    Starts: 1:30 pm
    Ends: August 7, 2020 - 2:30 pm
    Description: Join the fun at this virtual dance party with our friends at No Rulz Art. RSVP to lauriek@usod.org for the Zoom code.
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  • Rise & Sign with Miss Amanda
    Starts: 10:00 am
    Ends: August 8, 2020 - 11:00 am
    Description: Join us virtually to learn American Sign Language vocabulary to help enhance and promote communication. We will learn signs for basic needs and wants in each session for babies, toddlers, and young children, keeping it fun by singing familiar songs. RSVP to rich@usod.org
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  • Grandparents Virtual Support Group
    Starts: 10:00 am
    Ends: August 10, 2020 - 11:30 am
    Location: USOD Office, 6533-B Brecksville Road, Independence, OH 44131
    Description: USOD grandparents join us via Zoom. RSVP to Laurie at 216.702.3820 or <a href="mailto:lauriek@usod.org">lauriek@usod.org</a>.
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  • Virtual Sing Along
    Starts: 10:00 am
    Ends: August 11, 2020 - 11:00 am
    Description: Join Jesse Jukebox on Zoom for this virtual sing along for the enjoyment of the entire family. RSVP to debbie@usod.org
  • Sibshops-Virtual
    Starts: 11:00 am
    Ends: August 11, 2020 - 1:00 pm
    Description: A support group for siblings, ages 8-12, of people with Down syndrome. RSVP to lauriek@usod.org to get the Zoom link.
  • Jacobs Ladder 321 Virtual Workout
    Starts: 6:00 pm
    Ends: August 11, 2020 - 7:00 pm
    Description: Tony D'Orazio, founder of Jacobs ladder Special Needs Fitness, along with his son, Jake, who is a certified fitness instructor, lead us through a virtual calisthenic-based workout. Moms, dads, & siblings can join in too! RSVP to rich@usod.org.
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  • Young Friends Fun Time with Miss Barb
    Starts: 5:00 pm
    Ends: August 12, 2020 - 6:00 pm
    Description: Families with young children are invited to our Young Friends Story Time, an online space where the imagination soars. RSVP to Rich at rich@usod.org for the Zoom code.
  • MBS Virtual Bingo
    Starts: 6:30 pm
    Ends: August 12, 2020 - 7:30 pm
    Description: The MindBodySoul program is hosting a virtual bingo for adults with Down syndrome via Zoom. The bingo game is exactly like the bingo we all know. RSVP to linda@usod.org
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  • Jacobs Ladder 321 Virtual Workout
    Starts: 6:00 pm
    Ends: August 13, 2020 - 7:00 pm
    Description: Tony D'Orazio, founder of Jacobs ladder Special Needs Fitness, along with his son, Jake, who is a certified fitness instructor, lead us through a virtual calisthenic-based workout. Moms, dads, & siblings can join in too! RSVP to rich@usod.org.
  • Cooking Made Easy
    Starts: 6:30 pm
    Ends: August 13, 2020 - 7:30 pm
    Description: Join in this popular class as we make recipes using a variety of ingredients and cooking tools. Visual recipes will be used to help participants follow the steps. RSVP to gina@usod.org to get the Zoom link and visual recipe. Note: Participants are limited per class to ensure one-on-one coaching.
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  • Dance Party with No Rulz Art
    Starts: 1:30 pm
    Ends: August 14, 2020 - 2:30 pm
    Description: Join the fun at this virtual dance party with our friends at No Rulz Art. RSVP to lauriek@usod.org for the Zoom code.
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  • Virtual Sing Along
    Starts: 10:00 am
    Ends: August 18, 2020 - 11:00 am
    Description: Join Jesse Jukebox on Zoom for this virtual sing along for the enjoyment of the entire family. RSVP to debbie@usod.org
  • Jacobs Ladder 321 Virtual Workout
    Starts: 6:00 pm
    Ends: August 18, 2020 - 7:00 pm
    Description: Tony D'Orazio, founder of Jacobs ladder Special Needs Fitness, along with his son, Jake, who is a certified fitness instructor, lead us through a virtual calisthenic-based workout. Moms, dads, & siblings can join in too! RSVP to rich@usod.org.
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  • Young Friends Fun Time with Miss Barb
    Starts: 5:00 pm
    Ends: August 19, 2020 - 6:00 pm
    Description: Families with young children are invited to our Young Friends Story Time, an online space where the imagination soars. RSVP to Rich at rich@usod.org for the Zoom code.
  • Circle of Support-Virtual
    Starts: 6:00 pm
    Ends: August 19, 2020 - 8:00 pm
    Description: Learn about technology to keep your loved one with Down syndrome safe. RSVP to debbie@usod.org for the Zoom link.
  • MBS Virtual Bingo
    Starts: 6:30 pm
    Ends: August 19, 2020 - 7:30 pm
    Description: The MindBodySoul program is hosting a virtual bingo for adults with Down syndrome via Zoom. The bingo game is exactly like the bingo we all know. RSVP to linda@usod.org
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  • Jacobs Ladder 321 Virtual Workout
    Starts: 6:00 pm
    Ends: August 20, 2020 - 7:00 pm
    Description: Tony D'Orazio, founder of Jacobs ladder Special Needs Fitness, along with his son, Jake, who is a certified fitness instructor, lead us through a virtual calisthenic-based workout. Moms, dads, & siblings can join in too! RSVP to rich@usod.org.
  • Cooking Made Easy
    Starts: 6:30 pm
    Ends: August 20, 2020 - 7:30 pm
    Description: Join in this popular class as we make recipes using a variety of ingredients and cooking tools. Visual recipes will be used to help participants follow the steps. RSVP to gina@usod.org to get the Zoom link and visual recipe. Note: Participants are limited per class to ensure one-on-one coaching.
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  • Dance Party with No Rulz Art
    Starts: 1:30 pm
    Ends: August 21, 2020 - 2:30 pm
    Description: Join the fun at this virtual dance party with our friends at No Rulz Art. RSVP to lauriek@usod.org for the Zoom code.
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  • Virtual Sing Along
    Starts: 10:00 am
    Ends: August 25, 2020 - 11:00 am
    Description: Join Jesse Jukebox on Zoom for this virtual sing along for the enjoyment of the entire family. RSVP to debbie@usod.org
  • Jacobs Ladder 321 Virtual Workout
    Starts: 6:00 pm
    Ends: August 25, 2020 - 7:00 pm
    Description: Tony D'Orazio, founder of Jacobs ladder Special Needs Fitness, along with his son, Jake, who is a certified fitness instructor, lead us through a virtual calisthenic-based workout. Moms, dads, & siblings can join in too! RSVP to rich@usod.org.
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  • Young Friends Fun Time with Miss Barb
    Starts: 5:00 pm
    Ends: August 26, 2020 - 6:00 pm
    Description: Families with young children are invited to our Young Friends Story Time, an online space where the imagination soars. RSVP to Rich at rich@usod.org for the Zoom code.
  • MBS Virtual Bingo
    Starts: 6:30 pm
    Ends: August 26, 2020 - 7:30 pm
    Description: The MindBodySoul program is hosting a virtual bingo for adults with Down syndrome via Zoom. The bingo game is exactly like the bingo we all know. RSVP to linda@usod.org
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  • Cooking Made Easy
    Starts: 6:30 pm
    Ends: August 27, 2020 - 7:30 pm
    Description: Join in this popular class as we make recipes using a variety of ingredients and cooking tools. Visual recipes will be used to help participants follow the steps. RSVP to gina@usod.org to get the Zoom link and visual recipe. Note: Participants are limited per class to ensure one-on-one coaching.
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