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We know that following the prenatal diagnosis of Down syndrome can be a scary time full of many unknowns. The volunteers, board members and staff of the USOD understand your fears. We will provide you with accurate and timely information about what Down syndrome is so you can make educated choices in the days to come. At your request we can connect you with other parents who have had a pre-diagnosis. (Please see our Parent to Parent Network.)
If you have a tentative pre-diagnosis of DS and have chosen not to have an amniocentesis, we will support you all the way through your pregnancy and beyond if you need us. In this situation we have welcomed new babies with DS and we have welcomed new babies without DS.
We have contacts to organizations that place babies with DS in adoptive homes. Most of these organizations have a waiting list of parents wanting to adopt a child with DS. Parents waiting to adopt usually have a good understanding of what it is like to raise a child with DS. Many already have a child with DS; others have had family members or friends who have children with DS.
We also welcome calls from Grandparents and other concerned family and friends.
Motherhood and genetic screening: a personal perspective - by Fiona Place
An on-line support forum (un-moderated) called Down Syndrome Pregnancy Posts.
Please contact us at the Up Side of Downs for information, our free new parent packet and to connect with our parent to parent network.