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Research
Center for Motor Behavior & Pediatric Disabilities
To conduct and disseminate basic scientific research to better understand the complexity of individuals with Down syndrome, cerebral palsy, and spina bifida and to utilize this knowledge to design and test innovative clinical services
Down Syndrome Quarterly
Down Syndrome Quarterly is an interdisciplinary journal devoted to advancing the state of knowledge on Down syndrome and will cover all areas of medical, behavioral, and social scientific research. It is published in March, June, September, and December and is distributed by subscription to individuals, organizations, and libraries. Journal Description Original short papers describing current research, including current or proposed projects or the results of completed studies; Reviews of the literature in specialized areas; Healthcare, including preventive medical recommendations based on assessment of the literature and considered opinions on what constitutes state-of-the-art practice; Editorial statements reflecting opinion on the state of the field; Book reviews and longer book review articles; Bibliographic compilations and/or lists of current research studies in various specialties; Abstracts of recently-published research studies with critical commentary; Lett ...
Down Syndrome Research Foundation & Resource Center
Located in Vancouver, BC, the Down Syndrome Research Foundation & Resource Center is dedicated to improving life for people with Down syndrome through research, education and services.
Kennedy Krieger Institute - Down Syndrome Clinic
The mission of the Down Syndrome Clinic team is to help each individual with Down Syndrome reach his or her full potential and function as independently as possible in all aspects of family, school and community life. To this end, the clinic team provides initial and follow-up evaluations, preventive medical screening, medical consultation, parent-training and ongoing therapy. The main center is in Baltimore Maryland. Currently they are taking DS individuals with AV for the DS Heart Study funded by the NIH.
National Down Syndrome Society
The National Down Syndrome Society supports young researchers seeking the causes of, and answers to, many of the medical, genetic, behavioral and learning problems associated with Down syndrome; sponsors internationally renowned scientific symposia; advocates on behalf of families and individuals affected by this condition; provides information and referral services through its toll-free number; and develops educational materials, many of which are distributed free of charge.
National Rehabilitation Information Center (NARIC)
We are a library and information center which serves anyone from the professional or lay person. We do collect and disseminate the results specifically from NIDRR funded research projects. Though our collect includes other documents related to disability and rehabilitation which are not NIDRR funded. Perhaps placement as a national organization may be more appropriate? As part of our referral services we provide a myriad of information on all types of rehabilitation and disability topics (i.e. advocacy, financial resources, specific disabilities/conditions, etc.). Information and referral services are free. We also provide document delivery of publications starting at 5 cents per page with a $5.00 USD minimum. Patrons can contact us by phone, fax, mail, email, virtual reference chat, or through our website. Our TTY number is 301/459-5984.
Stanford School of Medicine - Down Syndrome Research Ce...
We asked ourselves what it would take to move Down syndrome research to the forefront. Two essential elements: an inspiring and motivating environment to attract the best scientists and clinicians, and funds to support their research efforts. And so we began. Together with the tireless effort and input from these parents, the Center for Research and Treatment of Down Syndrome at Stanford University was created in April 2003. We are dedicated to helping people with Down syndrome by promoting awareness of research, identifying problems and treatments, and by supporting the community.
The Down Syndrome Research and Treatment Foundation (DS...
To stimulate biomedical research that will accelerate the development of treatments to significantly improve cognition for individuals with Down syndrome. Treatments that are developed to improve memory, learning and speech will allow individuals with Down syndrome to: Participate more successfully in school; Lead more active and independent lives; Prevent early cognitive decline.