Support Resource Directory Medical Resources Heart Issues
Heart Issues
Congential Heart Information Network
C.H.I.N. is a national organization that provides reliable information, support services, financial assistance and resources to families of children with congenital heart defects and acquired heart disease, adults with congenital heart defects, and the professionals who work with them.
Kennedy Krieger Institute - Down Syndrome Clinic
The mission of the Down Syndrome Clinic team is to help each individual with Down Syndrome reach his or her full potential and function as independently as possible in all aspects of family, school and community life. To this end, the clinic team provides initial and follow-up evaluations, preventive medical screening, medical consultation, parent-training and ongoing therapy. The main center is in Baltimore Maryland. Currently they are taking DS individuals with AV for the DS Heart Study funded by the NIH.
Les Leshin M.D.
Author's note: I'm a pediatrician and the father of Avi, 13 years old, and Nathan, 15 years old. (Photos!) Avi has Down Syndrome ("DS" for short) and has inspired me to write these essays about children with DS for other parents. I have put them here for general reading. You may E-mail me with any questions about these essays. I have also included some other pediatric items of interest for parents.
The Canadian Adult Congenital Heart (CACH) Network
The Canadian Adult Congenital Heart (CACH) Network was founded in October 1991. The CACH Network was created to pool the knowledge and experience of congenital heart disease professionals in Canada to help strengthen their skills and knowledge of the discipline, and to create a community of individuals committed to caring for adults with congenital heart disease-and their families.