Medical Outreach

USOD’s medical outreach program provides information about Down syndrome to families as well as pediatricians, obstetricians, nurses, social workers, genetic counselors, midwives and other healthcare providers seeking information. The primary goal of this program is to ensure that all parents and expectant parents with a possible or actual diagnosis of Down syndrome are given factual non-biased information with sensitivity and support, including information about USOD.

The USOD welcomes the opportunity to provide the medical community with accurate and relevant information about Down Syndrome. We can provide speakers at conferences, meetings and grand rounds presentations upon request. We want to help you deliver the best care possible for your patients with Down Syndrome and their families.

Health Guidelines
Health Information
Information for Medical Professionals
Research Opportunities
  • Amyloid Plaques and Down syndrome: The Waisman Center at the University of Wisconsin-Madison and the University of Pittsburgh Medical Center are seeking adults (ages 30 and above) with Down syndrome to participate in a research study involving an MRI and a PET scan. The research study will be aimed at imaging amyloid in the brains of healthy patients with Down syndrome.  Get full details here.
  • Links between Down syndrome and Alzheimer’s Disease: The goal of this research is to investigate links between Down syndrome and Alzheimer’s Disease in an effort to predict which individuals will develop dementia before showing any outward signs. Participants must have Ds, be between 25-35 and not show any signs of dementia.  Learn more about this study and how to participate here.
  • Evaluation of the Efficacy, Tolerability and Safety of Memantine Hydrochloride on Enhancing the Cognitive Abilities of Adolescents and Young Adults with Down Syndrome: A team of medical doctors and psychologists at the Case Western Reserve University, University Hospitals and the Cleveland Clinic is investigating the effects of memantine on individuals with Down syndrome between the ages of 15 and 32. To learn more about the study and how to participate, click Memantine Study flyer
  • Examining the Perspectives of Individuals with Disabilities and their Siblings regarding Independent Living, Employment and Self Determination: This research is being conducted by Sarah Hall of Ashland University and Meghan Burke of the University of Illinois for siblings and people with intellectual and/or developmental disabilities who are both over 18.  Learn more here.