USOD’s medical outreach program provides information about Down syndrome to families as well as pediatricians, obstetricians, nurses, social workers, genetic counselors, midwives and other healthcare providers seeking information. The primary goal of this program is to ensure that all parents and expectant parents with a possible or actual diagnosis of Down syndrome are given factual non-biased information with sensitivity and support, including information about USOD.
The USOD welcomes the opportunity to provide the medical community with accurate and relevant information about Down Syndrome. We can provide speakers at conferences, meetings and grand rounds presentations upon request. We want to help you deliver the best care possible for your patients with Down Syndrome and their families.
- Celiac Disease and Down Syndrome
- Dr. Roxanne Sukol, guest speaker at USOD Medical Night, 4/19/16.
View her TED Talk.
- Mammography Guidelines for Women with Down Syndrome
- Alzheimer’s Disease in People with Down Syndrome
- Moyamoya Disease
- Dental Care Guidelines for Caregivers of Patients with Down Syndrome
Information for Medical Professionals
- Online Study-University at Buffalo Occupational Therapy Oral Health Survey: Graduate students in the occupational therapy BS/MS program at University at Buffalo are currently conducting research on oral health care in individuals with developmental disabilities, which has been approved by the human subjects review board. They are looking for caregivers of individuals with developmental disabilities to share their experiences in oral health care in the home and/or in dental environment. The information collected from this survey will provide insight into the specific needs of individuals with developmental disabilities, the barriers they face in obtaining oral healthcare, and solutions they have found to improve their oral health. Learn more about the study and how to participate here.
- Links between Down syndrome and Alzheimer’s Disease: The goal of this research is to investigate links between Down syndrome and Alzheimer’s Disease in an effort to predict which individuals will develop dementia before showing any outward signs. Participants must have Ds, be between 25-35 and not show any signs of dementia. Learn more about this study and how to participate here.
- Evaluation of the Efficacy, Tolerability and Safety of Memantine Hydrochloride on Enhancing the Cognitive Abilities of Adolescents and Young Adults with Down Syndrome: A team of medical doctors and psychologists at the Case Western Reserve University, University Hospitals and the Cleveland Clinic is investigating the effects of memantine on individuals with Down syndrome between the ages of 15 and 32. To learn more about the study and how to participate, click Memantine Study flyer.
- Examining the Perspectives of Individuals with Disabilities and their Siblings regarding Independent Living, Employment and Self Determination: This research is being conducted by Sarah Hall of Ashland University and Meghan Burke of the University of Illinois for siblings and people with intellectual and/or developmental disabilities who are both over 18. Learn more here.
- Family Factors and the Quality of Life in Children with Down Syndrome: The purpose of this study is to learn about how parents view family functioning and quality of life of children with Down syndrome. Learn more here.
- Neurodegeneration in Aging Down Syndrome: The University of Pittsburgh Medical Center is seeking adults at least 25 years of age with Down syndrome to participate in this research study. The study involves both cognitive testing and scans of the brain via MRI and PET. Learn more here-NiAD Research Study